Paige and Tyson Snedeker

  • Feb. 22, 2013
  • #8040

Paige and Tyson Snedeker have a very rare, genetic disease. But that doesn’t stop this brother-sister duo, because they know they can do all things through Christ that strengthens them. 

Paige and Tyson Snedeker

Hi, I’m Joni Eareckson Tada with a story that will inspire you, because they sure do inspire me!

I’m talking about Paige Snedeker and her brother, Tyson. These two young adults both have a genetic disease that caused them to lose their hearing, their sight and their mobility. The two of them sit totally paralyzed in their wheelchairs and even have to use a ventilator to help them breathe. There is no name for their condition — it is that rare. But, oh, are these two amazing. I mean, just persevering for one thing: the incredible work it takes to get Paige and Tyson up in the morning and moving forward into the day. But they do it with a smile on their faces, and I attribute that to their incredible parents.

The way their parents communicate with Paige and Tyson is to get real close to their faces and use sign language. The two know American Sign Language — but you have to be within a foot or two of their eyes for them to see the hand signs. Oh, how precious it is for them to be able to see those few feet. And I have watched as they have communicated back with their mom and dad. With blinks and movements of the lips, Paige and Tyson are able to answer questions, express their feelings and, yes, even pray!

And it’s why these two — both paralyzed and can’t hear, on ventilators — are on my list of friends who regularly pray for me. They are real prayer warriors: God has gifted them with a large measure of faith and they know that their disabilities increase the import of every intercession. Although Paige has no use of her hands, she now draws and paints through the use of her mouth. And her inspiration comes from Philippians chapter 4 where it says, “I can do all things through Christ who strengthens me.”

I had the chance to meet Paige and Tyson Snedeker last year during a visit to Florida. They attended a gathering of about 25 or 30 special needs families, all with their own challenges. But when Mr. and Mrs. Snedeker wheeled their son and daughter into the room, and these other moms and dads observed how critical their needs were, oh, my goodness, we were all in awe! I snapped a photo of me and Paige and Tyson during that gathering, and I’ve posted it today on my radio page — I think you’ll clearly see how significant their disabilities are, but you know what? You’ll also clearly see Paige’s winning smile.

All this, and God hasn't taken His hand off the wheel of their lives for a nanosecond. Although their disease is extremely rare; and although it has meant the loss of so many external things, not to mention the use of their hands and legs; their disease did not come to them without first being filtered through the loving hands of the God of the Bible. And Paige and Tyson have a robust faith in the Lord to show for it. I think Charles Spurgeon summarizes it well. He says:

"It would be a very sharp and trying experience to me to think that I have an affliction which God never sent me, that the bitter cup was never filled by His hand, that my trials were never measured out by him, not sent to me by His arrangement of their weight and quantity."

Friend, may God give you today the same robust faith; faith that can be enlarged and increased; faith that can be made more weighty and golden as you graciously let God refine it through your response to trials. Persevering faith may well be the most beautiful of all virtues. So be inspired! Take a minute and visit my radio page today to see a photo of these two remarkable young people at joniandfriends.org. Oh, and while you’re on my radio page, click on the video of another inspiring testimony of my friend, Jasmine. Be inspired and be encouraged at joniandfriends.org.

© Joni and Friends 

 

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